It’s been a year since I’ve been prescribed Ruxolitinib (Jakavi) for GVHD of the skin. My skin and joint pain have continued to improve over the months. I have been able to discontinue a few medications as well. I no longer need Sirolimus and I’m currently down to 1mg of Prednisone, soon to be 0! This is a huge milestone for me. I can’t remember a time taking so few medications and I feel great. I never thought this day would come.

I can once again point my toes, sit cross legged, put weight on my wrists. The list goes on. I still have some dark pigmentation but this could also be due to the fact that I am starting to age. I turned 30 this year. The year of Covid hasn’t been all bad. I’m so grateful to still have my job during this pandemic. I feel safe in my current environment. My family and friends have remained safe and healthy. With the Covid vaccine becoming available, I have hopes that this world will return to its new normal very soon.