It’s been a year since I’ve been prescribed Ruxolitinib (Jakavi) for GVHD of the skin. My skin and joint pain have continued to improve over the months. I have been able to discontinue a few medications as well. I no longer need Sirolimus and I’m currently down to 1mg of Prednisone, soon to be 0! This is a huge milestone for me. I can’t remember a time taking so few medications and I feel great. I never thought this day would come.
I can once again point my toes, sit cross legged, put weight on my wrists. The list goes on. I still have some dark pigmentation but this could also be due to the fact that I am starting to age. I turned 30 this year. The year of Covid hasn’t been all bad. I’m so grateful to still have my job during this pandemic. I feel safe in my current environment. My family and friends have remained safe and healthy. With the Covid vaccine becoming available, I have hopes that this world will return to its new normal very soon.
One Day At A Time 
Thank you so much for sharing your story. It gives me hope.
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Hey Dear Friend,
Wow… soooooo great to hear the awesome news. Feeling really happy that you are shining so bright after a crazy, challenging and painful journey! May you continue to heal and may you continue to find joy in this precious life you have been given!
I am getting to a major milestone in completing a memoir of Deb Hubsmith’s life. It’s been a monumental research and writing project but also a cathartic one in many ways.
I’m so happy you are alive and doing so well. I hope your journey will continue to inspire others that have found themselves in a similar place.
Rock on Candace!!!!
Andy
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Andy, thank you! Congratulations on the book. I would love to read Deb’s story. Thanks again for your support!
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